Chris and I met Rose Vining at a LUNGevity Hope Summit in 2016. She is just one of many “faces of lung cancer.” Here is Rose’s story and why biomarker testing is so important:
Danielle's Story
In February 2016, Chris and I had the privilege of meeting Danielle James and her husband at a LUNGevity Hope Summit in the Dallas area. Danielle benefited from the drug crizotinib that Chris was in the clinical trial for when it was FDA approved for lung cancer. They shared the same rare gene mutation. She is such an inspiration with what she is doing with her life, I just had to share. This is Danielle’s story (shared with her permission):
In Loving Memory and In Honor
We had just found out the previous day at MD Anderson Cancer Center (in August 2010) that Chris was considered to have inoperable stage IV lung cancer, which had metastasized to the brain. As reality settled in the next day, I was an emotional wreck, no longer numb from the initial shock of the previous day’s news. But cancer wouldn’t wait for me to gain control of my emotions. It would continue to threaten my husband’s life at a rapid pace. I couldn’t let fear paralyze me. I needed to take action to learn how to best treat it and enhance my husband’s quality of life. I had a job to do as his caregiver, and I planned to give it my best shot. Being part of the team to save his life began with learning as much as I could about what we were facing.
Video of Chris Sharing His Story-Part 2 & 3
Video of Chris Sharing His Story-Part 1
Websites for Cancer Resources
The Conspiracy Theory Puzzle
Have you ever been puzzled by the “Big Pharma conspiracy theory?” I’ve lost count of the numerous times I heard accusations on social media that there’s a conspiracy between doctors and Big Pharma to hide the cure they’ve found for cancer so they can continue to rake in money through treatments and medications. I find that hard to believe. Doctors and biopharmaceutical employees and their families get cancer and use the same treatments they recommend to the public. If a cure existed yet, they would be using it themselves. But they die from the disease just like anyone else.
I’d like to fill you in on what my husband and I experienced firsthand and put the conspiracy theory to rest.
Progress in Treating Lung Cancer
Although there’s never a good time to have cancer, this is an exciting era with scientific breakthroughs becoming increasingly common that extend the quality of life for survivors. I have hope that a cure for the disease will be found in the near future. Researchers continue to make great strides in understanding the biology behind cancer and developing new ways to deal with it. Treatments that didn’t exist just a few years prior to my husband’s diagnosis saved his life. He achieved “no evidence of disease” three times, and he lived six years instead of just six months.
The Stigma of Lung Cancer Kills
Our friend Cindy passed away from lung cancer at age 39, and we attended her funeral in Houston on November 1. That day was difficult for both of us. With Cindy’s passing, four of the lung cancer patients we had become friends with and mentors to had died. They didn’t live as long with the diagnosis as Chris had. He had a little bit of survivor’s guilt because he was diagnosed first.
“Why am I still here and they’re not?” he asked.
Cindy’s death strengthened his determination to be a voice for people who can no longer speak for themselves here on earth. He wanted to raise awareness of this despicable disease and get it the attention it deserves.
The media has done a fantastic job of teaching our society that smoking can cause cancer. Now another harmful influence is causing deaths from lung cancer in those who have never smoked due to delayed diagnosis—stigma. People, including many doctors, still think that only smokers get the disease.
Lung Cancer Statistics
Be honest. When you hear that someone was diagnosed with lung cancer, is your first thought, “I’ll bet they smoked”? You would be amazed to know the number of times Chris was immediately asked, “Did you ever smoke?” His answer: “Never.”
10% to 15% of new lung cancer cases are among never-smokers.
60% to 65% of all new lung cancer diagnoses are among people who have never smoked or are former smokers.
The Key to Surviving Lung Cancer
If you have lungs, you can get lung cancer. Early detection is the key to surviving this horrible disease. My late husband was misdiagnosed for three months because his doctors never suspected lung cancer since he had never smoked. By the time he was diagnosed, it was Stage IV and had metastasized to his brain.
Symptoms of Lung Cancer
The signs and symptoms of lung cancer can take years to develop, and they may not appear until the disease is advanced. Some symptoms of lung cancer are in the chest:
White for the Fight Against Lung Cancer
Chris always wanted to raise awareness of lung cancer and get it the attention this despicable disease deserves, especially during November—Lung Cancer Awareness Month. He was upset that breast cancer—not lung cancer—was still getting all the media attention, with pink everywhere.
Back in 2012, he made the following tongue-in-cheek announcement on CaringBridge: